NAMI Research Opportunity – Survey for adults with schizophrenia and/or their caregivers

This study is seeking input via online survey from people with schizophrenia and caregivers of those with schizophrenia.

 

The survey will ask questions about what it is like to live with schizophrenia, participant experiences with medications and other ways of managing symptoms, and what people want to see from future drug treatments. The goal of this study is to inform a future patient-focused drug development meeting with the U.S. Food and Drug Administration (FDA).

 

 

Who can participate

1. You are aged 18* or older and either:
   • An individual diagnosed with schizophrenia at least six months ago
   • A caregiver of an adult with schizophrenia who cannot complete the survey on their own. It is not intended for professional, paid caregivers.
2. Live in the United States

*  Participants living in Alabama or Nebraska must be at least 19 years of age, and those in Mississippi or Puerto Rico must be at least 21 years of age.

Where the study taking place

The study takes place entirely online. Eligible participants can take the survey here.

How do I learn More

If you have questions or would like more information, please see the first page of the survey or contact the research team through this form.

• Research Opportunity – Survey for adults with schizophrenia and caregivers of adults with schizophrenia August 2022 (PNG IMAGE)
• Research Opportunity – Survey for adults with schizophrenia and caregivers of adults with schizophrenia August 2022 (PDF)

 

 

NAMI is committed to ensuring that the most effective treatments for mental illness are available to those who need them. Determining which treatments are most effective requires research. When NAMI is approached to be involved in research of any type, at any level, we take it very seriously. NAMI’s Chief Medical Officer Dr. Ken Duckworth and Chief Program Officer Dr. Teri Brister thoroughly review the research protocols and methodology and the documentation that the study has been approved by an Institutional Review Board (IRB) to assure the safety of those involved.

NAMI does not accept financial compensation for recruiting clinical trial participants. NAMI also does not endorse any products or treatments. We share these research opportunity notices with you, our field leaders, to distribute at your discretion if you believe that members of your community may be interested in participating in these trials. If you have questions about research at NAMI, please visit NAMI.org/research or email us at research@nami.org.