RESEARCH OPPORTUNITY
NAMI is committed to improving the lives of people impacted by mental health conditions through effective treatments, equitable public policies, and greater knowledge and understanding in society. Research is essential to advance each of these goals.
When NAMI is approached to be involved in research of any type, at any level, we take it very seriously. NAMI’s Chief Medical Officer Dr. Ken Duckworth and National Director of Research and Quality Assurance Dr. Teri Brister thoroughly review the research protocols and methodology and the documentation that the study has been approved by an Institutional Review Board (IRB) to assure the safety of those involved. NAMI does not accept financial compensation for recruiting research participants. NAMI also does not endorse any products or treatments. We share these research opportunity notices with you, our field leaders, to distribute at your discretion if you believe that members of your community may be interested in participating in these studies.
If you have questions about research at NAMI, please visit NAMI.org/research or email research@nami.org.
WHAT IS THE STUDY?
This study is an online survey for adults with psychosis and their caregivers. The goal of this study is to understand the experiences of individuals currently being treated with a long-acting injectable medication and their caregivers. The survey contains questions about different factors of health and well-being, including productivity, social functioning, and treatment outcomes.
WHO CAN PARTICIPATE?
Participants may be eligible for this study if they meet the following conditions:
• Experience of psychosis, or caregiver of person with experience of psychosis
• Currently being treated with a long-acting injectable medication
• Living in and being treated in the U.S. and able to read English
• 18 years of age or older at the time of first dose with a long-acting injectable medication
Up to 100 individuals with psychosis and up to 100 caregivers may participate in this study. Participants will answer a series of screening questions to ensure they meet eligibility criteria before completing the survey. Total participation time is estimated at 10-12 minutes. Participants who complete the survey will receive compensation for their time. Contact information will be required and collected by a third-party vendor but will not be associated with survey answers.
WHERE IS THE STUDY TAKING PLACE?
The online survey will be administered by HealthiVibe. Respondents are informed about uses and disclosures of the information they provide through a consent statement. HealthiVibe applies strong technical security measures to ensure the privacy and confidentiality of survey respondents. To participate, please click on the appropriate link below:
Patient survey: https://surveys.healthivibe.com/s3/pp3m-patient-nami
Caregiver survey: https://surveys.healthivibe.com/s3/pp3m-caregiver-nami
HOW DO I LEARN MORE?
If you have questions or would like more information, please contact recruitment@healthivibe.com.
